Article, Huntington Disease, Mental Health, Positive Living
I attended a conference for families impacted by Huntington’s disease (HD) — a spectacular event with expert panels and motivational speeches. But it’s the hugs and the feeling of being loved that I remember the most. There’s nothing like having a room full of people...
Appearance, Huntington Disease, Mental Health, Rare Disease
I’m delighted to let you know that I’ve been invited to tell my personal story at this month’s Vanderbilt support group meeting. I’ll be speaking about how I discovered that Huntington’s disease runs in my family and how that knowledge shaped my decision to have...
Article, Huntington Disease, Positive Living, Rare Disease
As you may know I own a publishing company called Lemonade Press – a publishing company focused on empowering people from underrepresented communities through storytelling. My latest book is called Positively Rare and I had the honour of writing about the book...
Huntington Disease, Mental Health, Podcast, Positive Living
I was so pleased to be asked to tape an episode of the “I Don’t Know How You Do It” podcast along side these two outspoken rare disease advocates. Host, Jessica Fein, is a published author and she was kind enough to write the forward for my latest...
