February 2025: Book Signing, Southeast Huntington’s Symposium, Nashville TN

Appearance

We will have a table selling our books at the Southeast Huntington’s Symposium in Nashville on February 8th. This annual event, hosted by Vanderbilt, brings together Huntington’s disease professionals from across the USA to share knowledge, collaborate and...

Blending Happiness with Migraine on the Warrior Within Podcast

Huntington Disease, Infertility, Mental Health, Podcast, Positive Living

Amber and I met through LinkedIn. We hopped on a call to chat and I ended up taping an episode of her podcast, Your Migraine Story Matters. Amber is a passionate and hard working migraine advocate. We spoke about migraines, Huntington’s disease and finding...

Bloopy the Alien Learns About HD on Help4HD Radio

Huntington Disease, Podcast

My daughter and I were on Help4HD Live to speak about her new book!  She wrote a children’s picture book about Huntington’s disease and we were asked to be on the program to speak about the inspiration behind the book and read an excerpt. I am so proud of...

November 2024: Speaking about Hope at the HSG Family Day

Appearance

I am so excited to let you know that I have been invited to speak at the Huntington Study Group’s annual meeting again this year. I will be speaking on a panel with Charles Sabine on the subject of HOPE. I will be speaking on Saturday November 9th, 2024 I will...

Caregiving, Parenting and the Power of Storytelling on the On One Condition Podcast

Family Planning, Huntington Disease, Infertility, Mental Health, Podcast, Positive Living

I was so delighted to have the in-depth conversation with Sylvain from the On One Condition Podcast. We covered an array of topics including how I found out Huntington’s disease ran in my family, going through genetic testing and how being gene positive for...