The Rare Spotlight: Erin Paterson telling the world about Huntington’s

Article, Huntington Disease

I kept my diagnosis as gene positive for Huntington’s disease a secret for over ten years because I was afraid of how people might react. I thought I would lose my job, I didn’t think people would want to be friends with me any more.  I was terrified of ending up...

December 2023: See you at Wish!

Appearance

See you at Wish 2024! I will be at this event hosted by Jimmy Pollard. It is an amazing event where HD families worldwide have the opportunity to share their stories and make a wish for the HD community for 2024. If you would like to attend you can reach out to Jimmy...

Embracing the Huntington’s Community

Article

I had chosen a seat towards the back of the conference room because I noticed the legendary Jimmy Pollard sitting there. I didn’t want to miss the chance to sit next to this Huntington’s disease (HD) advocate and all-around amazing person. I was at the Help4HD...

November 2023: Guest Speaker at the Huntington Society of Canada National Conference

Appearance, Huntington Disease, Infertility, Mental Health

The Huntington Society of Canada is having their first national conference in five years. I am so excited to be there. I will be speaking on a panel with other community members about raising awareness for Huntington’s Disease. I will also have a table with...

Want to Share Your Rare Disease Story?

Happening

You don’t have to be a writer to be in my next book – you just have to have a rare disease story to tell. Everyone involved will go through story development and coaching as part of the writer development program. You can find out more this opportunity by...