At a time when people didn’t want to talk to me about the scary feelings I had about Huntington’s disease the @sickboypodcast was there for me. They were having the conversations I longed to have with people in my life. They were taking about death and illness and joking along the way. Their podcast came along at a pivotal moment in my life. I wanted to be more open about my gene positive status for HD and they were examples of how that was possible. Five years later I am so excited that I was asked to speak about Huntington’s Disease on the Sickboy podcast. You can catch the interview HERE.
November 2025: Speaking to the University of Toronto Genetics Students
I have been invited again this year to share my experience with the genetics students at the University of Toronto. It...




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