About Erin Paterson
published author, speaker, and rare disease patient advocate
Erin’s Story
Erin Paterson is an internationally recognized rare disease advocate, bestselling author, and public speaker. As both a caregiver and a patient navigating chronic illness, she brings a rare combination of personal insight and professional experience to her work.
Erin has appeared on over 30 podcast episodes, is a five-time published author, and has written more than 25 articles featured across various platforms. Her mission is to demonstrate that even in the face of adversity, it’s possible to live a life filled with purpose, advocacy, and connection.
She is the founder of Lemonade Press, a publishing company that amplifies voices from underrepresented medical communities through collaborative anthologies. Erin is known for creating safe, empathetic spaces where individuals feel empowered to share their truths—transforming personal challenges into stories that inspire change.
Through her writing, speaking, and coaching, Erin bridges the gap between patients and the corporate world, providing
meaningful insight into the lived experiences of those affected by rare diseases, infertility, and mental health challenges.
She also serves as a member of the Huntington’s Disease Community Advisory Board (HD CAB), contributing her lived experience to improve patient-centered research and advocacy worldwide.
Her memoir, All Good Things: A Story About Genetic Testing, Infertility and One Woman’s Relentless Search for Happiness, is now available on Amazon.
Books
All Good Things
A memoir about genetic testing, infertility and one woman’s relentless search for happiness.
Not Cancelled
Erin’s story, Cupcakes and Crafts are Not Cancelled was selected to be a part of this anthology about the positive ways Canadians came together during Covid-19.
You Are Not Alone
An anthology of perinatal mental health stories. Erin wrote a piece about post adoption depression which was included in this book.
HD Heroes
Erin spearheaded this anthology of stories from people in the Huntington’s community. She also wrote a story about speaking to kids about HD.
I don’t need to tell you how hard it is to be a writer, just as I don’t need to tell Erin how difficult it is to be diagnosed with an incurable neurodegenerative disease, and then to fight through the aftermath of that trauma. What I will say is that I marvel at Erin’s evolution from a person incapable of discussing her diagnosis to a skilled storyteller who transforms some of her darkest moments — in vivid detail — into profound life lessons for all of us to ponder.
– dave boddiger, senior columns editor, bionews services
Connect with Erin
April 4 – 5, 2025
HD Reach Education Conference
Join Erin at this special storytelling conference. She will be speaking at the event as well as reading an excerpt from her book and signing books. You can find out more and register for the event HERE.
Cary, North Carolina
April 4 – 5, 2025
I have known Erin for many years and I’m inspired by her strength and determination to achieve her goals, no matter the circumstances. Erin is open-minded, willing to go above and beyond, and by being willing to expose and write about her personal journey she is an inspirational leader that the world needs to hear.
As an editor of Erin’s columns for Huntington’s Disease News since July 2019 I have found her to be a gifted storyteller who powerfully and sensitively narrates the challenges of her diagnosis on her life. In her columns, she skilfully describes her journey through genetic testing, infertility challenges and overcoming the shame and secrecy over her diagnosis. Her contribution helps to elevate the voices of others with Huntington’s and their families, and to educate others and spread awareness of the disease. I have found Erin to be professional and collaborative while working with the editorial team.
Erin Paterson’s prose is beautifully clear. She takes you on a journey with her flair for telling a story with all its multiple layers: her story, her journey; and we, as readers, offer our trust in the work of this talented writer and speaker, as we follow Paterson’s depiction of anguish, joy and discovery.
Book the Author
Erin@ErinPaterson.com
Contact the Author
Hello@ErinPaterson.com
Special Order Erin's Books
Erin@LemonadeCommunity.com