Appearance, Huntington Disease, Mental Health, Rare Disease
I have been invited again this year to share my experience with the genetics students at the University of Toronto. It is so important to engage with people early in their careers to help them understand the real-life implications that genetic testing can have on...
Appearance, Huntington Disease, Infertility, Mental Health, Rare Disease
Living with a chronic or serious illness affects more then just our physical health, it impacts our mental health as well. I am so grateful for the opportunity to speak at the IGM Financial Inc. DiverseAbility Business Resource Group to speak about how to embrace...
Appearance, Huntington Disease
I have been invited to speak at the Huntington Society of Canada’s annual conference. I will be speaking on October 31 at 2pm EST on a panel called The Virgin River Effect: How to use storytelling to raise awareness, funds, and hope for Huntington disease. Find...
Appearance, Mental Health, Positive Living, Rare Disease
I’m excited to be joining fellow rare disease advocate Laura Will on June 19 for the Know Rare “Authors in Rare Disease” series. Together, we’ll share how storytelling and advocacy can transform pain into purpose. It’s going to be an inspiring conversation you won’t...
