Article, Family Planning, Huntington Disease, Mental Health, Positive Living
“Do you feel the representation of Huntington’s disease (HD) is accurate on Virgin River?” A close friend of mine asked me today. As I sat in my living room, drinking my morning coffee and scrolling through Instagram, I thought about her question. Funnily enough I had...
Article, Huntington Disease
I spent the first three days sitting next to my dad’s hospital bed, watching his chest rise and fall slowly. He was asleep the majority of the time, fighting off something unknown. Anytime he moved, I jumped up from my chair and stood where he could see me just in...
Adoption, Article, Family Planning, Infertility
We had been carrying an empty infant car seat around with us all morning. At the check-in counter, through security, at the magazine shop. It was on the floor next to us as we anxiously sat at our gate waiting for our flight to board. “Do you think people are...
Article, Family Planning, Huntington Disease, Infertility
I slipped my cell phone into my back pocket and headed down to the cramped washroom in the basement for a little privacy. With shaking hands, I called into my voicemail and listened to the now familiar voice of the nurse: “Your pregnancy test came back negative. I am...
Adoption, Article, Family Planning, Huntington Disease, Infertility
One evening I sat down at my desk in my home office, turned on the orange lamp next to me, and prepared to write by its soft glow. Before placing my fingers on the keyboard, I took a deep breath and sat there imagining the expectant parents somewhere out there, trying...
Article, Family Planning, Huntington Disease
I was sitting next to my husband in a sterile hospital room. I was so nervous; pools of sweat had already gathered beneath my arms. The genetic counselor, across the table from us, removed a piece of paper from the white envelope in her hand. She knew we were anxious...
