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How I’m Taking Back Control After Receiving a Rare Disease Diagnosis

How I’m Taking Back Control After Receiving a Rare Disease Diagnosis

Article, Family Planning, Huntington Disease

I was sitting next to my husband in a sterile hospital room. I was so nervous; pools of sweat had already gathered beneath my arms. The genetic counselor, across the table from us, removed a piece of paper from the white envelope in her hand. She knew we were anxious...
Your Home Study Interview: 5 Tips To Help You Deal with Tricky Topics

Your Home Study Interview: 5 Tips To Help You Deal with Tricky Topics

Adoption, Article, Family Planning, Huntington Disease, Infertility

It’s been years now but I still remember it, my husband and I sitting on an uncomfortable sofa across from our adoption practitioner at our first home-study interview.  I was so nervous I had already begun to sweat. I had a secret and I was terrified of what would...
A Patient’s Perspective on Genetic Testing on the KevinMD Podcast

A Patient’s Perspective on Genetic Testing on the KevinMD Podcast

Family Planning, Huntington Disease, Infertility, Mental Health, Podcast

Living life as gene positive for Huntington’s disease and means I know what my future holds. I spoke to Kevin Pho about the impacts my diagnosis has on my life, my experience with the medical system, the ways I cope and so much more. You can hear the full...
A Story About Genetic Testing and Infertility  on the She Speaks Podcast

A Story About Genetic Testing and Infertility on the She Speaks Podcast

Adoption, Family Planning, Huntington Disease, Infertility, Podcast, Positive Living

It was a struggle to find anything good in my life after being diagnosed as gene positive for Huntington’s disease and dealing with infertility. Those were the hardest years of my life but I told myself two things – I was not going to let those things ruin...
Erin’s Story – Featured on Huntington’s Disease Youth Organization (HDYO)

Erin’s Story – Featured on Huntington’s Disease Youth Organization (HDYO)

Adoption, Family Planning, Huntington Disease, Infertility, Uncategorized

My husband and I were just getting home from a run with our friends. As we were walking through the front door my phone started ringing. I kicked off my shoes in a hurry and they landed haphazardly on the floor. My gym bag was still hanging from my shoulder as I...
Erin Paterson: From HD to Happiness

Erin Paterson: From HD to Happiness

Adoption, Article, Family Planning, Huntington Disease, Infertility, Positive Living, Uncategorized

I was sitting on the edge of the bed at 9am staring at the hardwood floor.  It was almost time to start work, but I couldn’t gather the strength to move. I had no idea how I was going to make it through the next five minutes let alone an entire day. Lifting...
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