Happening, Huntington Disease, Rare Disease
This was a first for me! I had the opportunity to have breakfast on Parliament Hill with some MP’s and the deputy speaker of the house today. They invited members of the rare disease community to share their experiences and concerns. I spoke to Tom Kmiec and even had...
Happening, Huntington Disease, Mental Health, Positive Living, Rare Disease
I am so excited to let you know that I have been nominated for Canada’s Top Mental Health Advocacy Awards presented by Reach Out Together. Here is what the nomination committee wrote: “Rare disease advocate, author, and speaker, Erin is redefining...
Adoption, Books Reviews, Family Planning, Happening, Huntington Disease, Infertility, Mental Health, Positive Living
We have received so many beautiful endorsements for my new collaborative book – Huntington’s Disease Heroes. I am truly touched by how the Huntington’s community has come together to support the book. These moving stories of real people affected by...
Happening, Huntington Disease, Infertility, Mental Health, Positive Living
Did you know I own a publishing company called Lemonade Press? We are currently accepting applications for custom collaborative books for publication in 2024. If you are a member of an under represented medical or rare disease community and have an interest in...
Family Planning, Happening, Huntington Disease, Mental Health, Positive Living
FOR IMMEDIATE RELEASE Rare Disease Community Comes Together to Release Book for Rare Disease Day, February 28 Sharing Stories from an Underrepresented Rare Disease Community February 23, 2023 — Toronto, Ontario, Canada Huntington’s disease has been steeped in...
