Appearance, Huntington Disease, Mental Health, Rare Disease
I have been invited again this year to share my experience with the genetics students at the University of Toronto. It is so important to engage with people early in their careers to help them understand the real-life implications that genetic testing can have on...
Article, Huntington Disease, Mental Health, Rare Disease
As I sat down in the plush green chair across from my therapist, I knew we were going to spend much of the day’s session talking about the stresses of being a caregiver. I didn’t want to talk about endless hours I dedicate to my dad’s care, but my frustration that few...
Huntington Disease, Infertility, Mental Health, Podcast
I was so happy to be invited as a guest on the Amplify podcast I’ve come a long way since the dark days of depression that followed my diagnosis as gene positive for Huntington’s disease. I was grateful to share the rare disease advocacy work I do, from...
Happening, Huntington Disease, Rare Disease
This was a first for me! I had the opportunity to have breakfast on Parliament Hill with some MP’s and the deputy speaker of the house today. They invited members of the rare disease community to share their experiences and concerns. I spoke to Tom Kmiec and even had...
Appearance, Huntington Disease, Infertility, Mental Health, Rare Disease
Living with a chronic or serious illness affects more then just our physical health, it impacts our mental health as well. I am so grateful for the opportunity to speak at the IGM Financial Inc. DiverseAbility Business Resource Group to speak about how to embrace...
Article, Huntington Disease, Mental Health, Rare Disease
It’s been a week since the news broke of UniQure’s trial successfully slowing the progression of HD, and I still find myself breaking down in tears. I have been going about my life, doing the groceries, going to the gym, cleaning the house…and the tears keep coming...
