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Erin Paterson
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Saying ‘Yes, Yes!’ to the Power of Words

Saying ‘Yes, Yes!’ to the Power of Words

Article, Huntington Disease, Positive Living

I wasn’t expecting to be brought to tears when I heard motivational speaker Lisa Nichols address a crowd at the Archangel Summit in Toronto last year. Nichols strode onto the catwalk-style stage wearing a long, embroidered dress, her braided hair cascading down...
I Have Gained Many Things Because of Huntington’s

I Have Gained Many Things Because of Huntington’s

Article, Huntington Disease, Positive Living

I walked through the door of my condo at 9 p.m., kicked off my running shoes, and dropped my gym bag on the floor. Crap, he’s not back yet, I thought to myself. I had just returned from my fifth run of the week. I was beating down my body and my mind with exercise. It...
I’ve Lost Many Things Because of Huntington’s

I’ve Lost Many Things Because of Huntington’s

Article, Family Planning, Huntington Disease, Positive Living

During the holidays, the small, wood-paneled dining room was full to bursting with my family members. Ten or more people squeezed around a table meant for six, with just an inch of elbowroom between us. My dad sat at the head of the table, which was covered by a cream...
What It’s Like to Test Positive for a Rare Disease and No One Understands How You Feel

What It’s Like to Test Positive for a Rare Disease and No One Understands How You Feel

Article, Huntington Disease, Positive Living

I was out for coffee with a girlfriend one afternoon, shortly after I was diagnosed as gene positive for Huntington’s disease (HD). We were sitting in large brown leather chairs next to an electric fire place, our coffees on a small table between us. “I am worried...
Having a Role Model Helped Me to Heal

Having a Role Model Helped Me to Heal

Article, Family Planning, Huntington Disease, Infertility, Positive Living

I was an emotional mess when I first met Jeff Carroll at a Huntington’s disease conference. My recent gene-positive diagnosis was on my mind. I couldn’t talk about it without crying, and I believed that I would never be happy again. My husband and I were trying to...
‘Just Show Up’: Accepting Support from the Huntington’s Community

‘Just Show Up’: Accepting Support from the Huntington’s Community

Article, Huntington Disease, Positive Living

For a time following my diagnosis as gene-positive for Huntington’s disease (HD), I avoided elderly people. The mere glimpse of a wrinkled hand was a reminder that I was going to develop Huntington’s someday, and that was something I was trying to forget....
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