Happening, Huntington Disease, Mental Health, Positive Living, Rare Disease
I am so excited to let you know that I have been nominated for Canada’s Top Mental Health Advocacy Awards presented by Reach Out Together. Here is what the nomination committee wrote: “Rare disease advocate, author, and speaker, Erin is redefining...
Appearance, Mental Health, Positive Living, Rare Disease
I’m excited to be joining fellow rare disease advocate Laura Will on June 19 for the Know Rare “Authors in Rare Disease” series. Together, we’ll share how storytelling and advocacy can transform pain into purpose. It’s going to be an inspiring conversation you won’t...
Appearance, Huntington Disease, Mental Health, Positive Living
I’m honored to be one of three women invited to share a story about courage and perseverance at this month’s That’s What She Said storytelling event. Hosted by Courtney McLeod, these gatherings bring together a kind and caring community of women. I have no doubt...
Article, Huntington Disease, Mental Health, Positive Living
I attended a conference for families impacted by Huntington’s disease (HD) — a spectacular event with expert panels and motivational speeches. But it’s the hugs and the feeling of being loved that I remember the most. There’s nothing like having a room full of people...
Article, Huntington Disease, Positive Living, Rare Disease
As you may know I own a publishing company called Lemonade Press – a publishing company focused on empowering people from underrepresented communities through storytelling. My latest book is called Positively Rare and I had the honour of writing about the book...
Huntington Disease, Mental Health, Podcast, Positive Living
I was so pleased to be asked to tape an episode of the “I Don’t Know How You Do It” podcast along side these two outspoken rare disease advocates. Host, Jessica Fein, is a published author and she was kind enough to write the forward for my latest...
