Article, Huntington Disease, Positive Living
I was out for coffee with a girlfriend one afternoon, shortly after I was diagnosed as gene positive for Huntington’s disease (HD). We were sitting in large brown leather chairs next to an electric fire place, our coffees on a small table between us. “I am worried...
Article, Family Planning, Huntington Disease, Infertility, Positive Living
I was an emotional mess when I first met Jeff Carroll at a Huntington’s disease conference. My recent gene-positive diagnosis was on my mind. I couldn’t talk about it without crying, and I believed that I would never be happy again. My husband and I were trying to...
Article, Huntington Disease, Positive Living
For a time following my diagnosis as gene-positive for Huntington’s disease (HD), I avoided elderly people. The mere glimpse of a wrinkled hand was a reminder that I was going to develop Huntington’s someday, and that was something I was trying to forget....
Huntington Disease, Podcast, Positive Living
To listen to my performance on the Grown Up’s Read Things They Wrote as Kids, episode 227, click HERE
Article, Huntington Disease, Positive Living
I was standing backstage in a dimly lit holding area sectioned off from the audience by a heavy velvet curtain. I took a deep breath, trying to stop the trembling that was making its way through my body. Dan, the event organizer, caught my eye mid-breath and gave me...
Article, Huntington Disease, Positive Living
Every time we visit my dad, we go for a walk on the beach. On a recent cool September afternoon, the four of us wandered along the water’s edge, poking at rocks and admiring the ripples in the sand. My dad was wearing his green fleece jacket, jeans, and a pair...
