I was so happy to be invited as a guest on the Amplify podcast I’ve come a long way since the dark days of depression that followed my diagnosis as gene positive for Huntington’s disease. I was grateful to share the rare disease advocacy work I do, from publishing books for underrepresented medical communities, to speaking at medical conferences, and stepping into the role of caregiver for my dad. You can listen to the episode HERE.
November 2025: Speaking to the University of Toronto Genetics Students
I have been invited again this year to share my experience with the genetics students at the University of Toronto. It...




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