I’m excited to be joining fellow rare disease advocate Laura Will on June 19 for the Know Rare “Authors in Rare Disease” series. Together, we’ll share how storytelling and advocacy can transform pain into purpose. It’s going to be an inspiring conversation you won’t want to miss!
December 2025: One Family One Wish Virtual Event
My daughter and I have been invited by Jimmy Pollard to speak at this years "One Family One Wish" virtual event. Every...




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