Positively Rare: Erin Paterson Shares Her Experience of Being Gene Positive for Huntington’s

Written by Erin Paterson

May 5, 2025

When I rolled out of bed that Saturday morning my entire body was aching. A line of bruises ran along my swollen stomach and I felt dizzy for some reason. This must be a weird side effect from the medication, I thought to myself. Even though I only had thirty minutes to get ready I found it hard to get moving. I felt a familiar deep vibrating ball of energy in my chest. That was where my depression sat. It was a constant unwanted companion that I couldn’t seem to get rid of no matter how hard I tried. I got dressed and managed to eat a piece of buttered toast before leaving for the fertility clinic. My husband was working in the basement with the plumbers so I had to go by myself that morning.

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Published on LDA Research

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