It’s been years now but I still remember it, my husband and I sitting on an uncomfortable sofa across from our adoption practitioner at our first home-study interview. I was so nervous I had already begun to sweat. I had a secret and I was terrified of what would happen once it came out. I had been diagnosed as gene positive for Huntington’s Disease (HD), a neurological condition that slowly kills nerve cells in the brain, causing cognitive impairment, uncontrolled movements and emotional issues. Being gene positive means I will get HD one day; I just don’t know when the symptoms will start. Read More…
November 2025: Speaking to the University of Toronto Genetics Students
I have been invited again this year to share my experience with the genetics students at the University of Toronto. It...




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