June 2025: Speaking at a Storytelling Event for Women

Appearance, Huntington Disease, Mental Health, Positive Living

I’m honored to be one of three women invited to share a story about courage and perseverance at this month’s That’s What She Said storytelling event. Hosted by Courtney McLeod, these gatherings bring together a kind and caring community of women. I have no doubt...

May 2025: Speaking at the Vanderbilt Support Group

Appearance, Huntington Disease, Mental Health, Rare Disease

I’m delighted to let you know that I’ve been invited to tell my personal story at this month’s Vanderbilt support group meeting. I’ll be speaking about how I discovered that Huntington’s disease runs in my family and how that knowledge shaped my decision to have...

April 2025: Speaking at the HD Reach Education Conference

Appearance

I will be speaking on a number of panels at the HD Reach Education Conference in North Carolina. The theme of the event is storytelling and there will be a number of published authors at the event including my daughter who wrote a children’s book about HD.  The...

February 2025: Book Signing, Southeast Huntington’s Symposium, Nashville TN

Appearance

We will have a table selling our books at the Southeast Huntington’s Symposium in Nashville on February 8th. This annual event, hosted by Vanderbilt, brings together Huntington’s disease professionals from across the USA to share knowledge, collaborate and...

November 2024: Speaking about Hope at the HSG Family Day

Appearance

I am so excited to let you know that I have been invited to speak at the Huntington Study Group’s annual meeting again this year. I will be speaking on a panel with Charles Sabine on the subject of HOPE. I will be speaking on Saturday November 9th, 2024 I will...

March 2024: Speaking to the Wave Life Sciences Staff

Appearance, Family Planning, Huntington Disease, Positive Living

I have been invited to Boston to speak at the Wave Life Sciences offices next month. I will be representing the Huntington’s community and speaking what it is like to live with Huntington’s in the family. Wave Life Sciences is a biotechnology company...