I have been invited to Boston to speak at the Wave Life Sciences offices next month. I will be representing the Huntington’s community and speaking what it is like to live with Huntington’s in the family.
Wave Life Sciences is a biotechnology company working on finding a treatment for Huntington’s disease.
I was recently interview for story which has been featured on the rare disease website - Know Rare. You can read the...
When you spend years of your life hiding something (that Huntington’s was in my family) that feeling of shame sticks...
I have a rare disease, well not quite yet, but I live with Huntington’s every day. I am gene positive for Huntington’s...
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