Family Planning, Huntington Disease, Infertility, Podcast, Positive Living
Deciding to go through genetic testing for Huntington’s disease, managing the emotional aftermath of genetic testing and talking to kids about Huntington’s – these are just some of the important subjects Melissa and I spoke about on her podcast. She is such a...
Happening, Huntington Disease, Infertility, Mental Health, Positive Living
Did you know I own a publishing company called Lemonade Press? We are currently accepting applications for custom collaborative books for publication in 2024. If you are a member of an under represented medical or rare disease community and have an interest in...
Appearance, Books Reviews, Family Planning, Huntington Disease, Infertility, Mental Health, Positive Living
I am so excited to be attending the HD book club meeting next month hosted by HD Reach. Members of the community are reading the first ten chapters of Huntington’s Disease Heroes and will be discussing the stories that night. I will be at attending virtually....
Family Planning, Featured, Huntington Disease, Infertility, Mental Health, Positive Living
I was so delighted to be interview by fellow HD advocate and columnist for HungtingtonsDiseaseNews.com, Carlos Briceno. His story covers how the book Huntington’s Disease Heroes came about and why it is so important to keep sharing stories about the HD...
Huntington Disease, Positive Living, Uncategorized
I had the pleasure of speaking to Kevin on The Podcast by Kevin MD about the role of being a caregiver as someone who is gene positve for Huntingtington’s disease, caregiver burnout and speaking to kids about medical issues. The episode will be released in a few...
Article, Family Planning, Huntington Disease, Mental Health, Positive Living
These days as my father’s Huntington’s disease progresses and I take on more and more, I have learned how quickly being a caregiver can consume my life. Yes, he is still living two hours away and I don’t take care of his day-to-day needs, but I do everything else for...
