Adoption, Family Planning, Featured, Huntington Disease, Infertility
I was recently interview for story which has been featured on the rare disease website – Know Rare. You can read the article HERE
Family Planning, Featured, Huntington Disease, Infertility, Mental Health, Positive Living
I was so delighted to be interview by fellow HD advocate and columnist for HungtingtonsDiseaseNews.com, Carlos Briceno. His story covers how the book Huntington’s Disease Heroes came about and why it is so important to keep sharing stories about the HD...
Family Planning, Featured, Huntington Disease, Mental Health
“I was 12 years old when my grandmother passed away and I hated her. I just thought of her as a mean old lady who never smiled or spoke to me. I hated the way that thinking about her and talking about her took up so much of my family’s time and energy. Every time my...
Featured, Huntington Disease
I curated this book of stories full of stories from the Huntington’s community. The book features stories from 25 people from 9 countries from a wide range of perspectives. From people who are gene positive, gene negative or untested. People who have had...
Featured, Huntington Disease, Mental Health, Positive Living
Help 4 HD International asked me 20 questions about living with Huntington’s disease in the family. Why did you decide to get tested? What is your biggest struggle? If you had the world’s attention for 15 seconds what would you say? You can read the whole...
Adoption, Family Planning, Featured, Huntington Disease, Infertility, Mental Health
If you would like to read an excerpt from my book, All Good Things, you can do so on WeHaveAFace.org
