Publications & Appearances
Podcasts
Articles
Featured
Appearances
Happenings
Podcasts
Huntington’s Disease Heroes Book on We Have a Face TV
I was interviewed by Kevin Jess on We Have a Face TV about my upcoming book, Huntington's Disease Heroes. Not only did we speak about some of the inspirational stories that are going to be in the book, we discussed how important it is for us to be able to share our...
Confronting Physician Bias on The Podcast by Kevin MD
Having the opportunity to share our experiences as a community is so important. I am grateful to Kevin Pho of The Podcast by Kevin MD for creating a valuable space to do that. I was on the show speaking about my experiences advocating for my Dad while he was in the...
The Gift of Huntington’s Disease on the Hot Mess to Awesomeness Podcast
After testing gene positive for Huntington’s disease I told myself, I don’t want this to ruin my life. I want to find happiness again. I spoke to host Dionne Thomson on her podcast about how I found out a genetic disease ran in my family, the depression that followed...
Living a Meaningful Life on the Own Your Choices Own Your Life Podcast
I was so touched to have this conversation with Marsha on the Own Your Choices Own Your Life podcast. We briefly talked about the hardships I have been through but more of the conversation was focused on taking positive action in our lives despite the bad things that...
Rare Disease and the Impacts on Family Planning on the Path to Me Podcast
I was interview by Sara Glendenning on the Path to Me Podcast about what it's like living as a person who is gene positive for Huntington's disease (HD). We covered a lot of important topics including having kids when they are at risk for a genetic disease, going...
The Emotional Impact of Genetic Testing on The Podcast by Kevin MD
I spoke to host Kevin MD about the what it felt like in the months after testing gene positive diagnosis for Huntington's disease. We talked about the depression I went through and the things I did to cope with the news. Episodes of this podcast are a quick 15 minutes...
Articles
Person with Huntington’s Disease on Popular Netflix Show
“Do you feel the representation of Huntington’s disease (HD) is accurate on Virgin River?” A close friend of mine asked me today. As I sat in my living room, drinking my morning coffee and scrolling through Instagram, I thought about her question. Funnily enough I had...
Advocating for a Sick Parent by Confronting Physician Bias
I spent the first three days sitting next to my dad’s hospital bed, watching his chest rise and fall slowly. He was asleep the majority of the time, fighting off something unknown. Anytime he moved, I jumped up from my chair and stood where he could see me just in...
The Day We Met Our Newborn Baby Through Adoption
We had been carrying an empty infant car seat around with us all morning. At the check-in counter, through security, at the magazine shop. It was on the floor next to us as we anxiously sat at our gate waiting for our flight to board. “Do you think people are...
What It’s Like to Be Infertile When You A Have Rare Disease
I slipped my cell phone into my back pocket and headed down to the cramped washroom in the basement for a little privacy. With shaking hands, I called into my voicemail and listened to the now familiar voice of the nurse: “Your pregnancy test came back negative. I am...
How We Wrote Our Adoption Profile Letter
One evening I sat down at my desk in my home office, turned on the orange lamp next to me, and prepared to write by its soft glow. Before placing my fingers on the keyboard, I took a deep breath and sat there imagining the expectant parents somewhere out there, trying...
How I’m Taking Back Control After Receiving a Rare Disease Diagnosis
I was sitting next to my husband in a sterile hospital room. I was so nervous; pools of sweat had already gathered beneath my arms. The genetic counselor, across the table from us, removed a piece of paper from the white envelope in her hand. She knew we were anxious...
As Featured In
You Are Not Alone: An Anthology of Perinatal Mental Health Stories
A story I wrote about infertility and post adoption depression was chosen to be a part of this wonderful anthology released by The Canadian Perinatal Mental Health Collaborative. If you would like to pick up a copy of You Are Not Alone: An Anthology of Perinatal...
My Story Accepted to Snapdragon: A Journal of Art and Healing
I am so proud that a story I wrote called "The Fall" was accepted to an online literary Journal. The piece appears in the Fall 2020, issue 6.3 themed Empty/Enough. This is a longer story, 1933 words, which meant I was able to go into more depth about the subject...
Not Cancelled: Canadian Kindness in the Face of Covid-19
I am thrilled to let you know that my story "Cupcakes and Crafts are Not Cancelled" was published the book Not Cancelled: Canadian Kindness in the Face of Covid-19. This anthology is full of inspiring stories collected from across Canada during the Covid -19 pandemic....
Our Story Featured in Huntington Society of Canada Newsletter
It took me a long time before I felt comfortable talking about Huntington Disease and infertility. In January I was interviewed by the Huntington Society of Canada. I am so pleased to tell you that the story of how we came to create our family appears in this months...
Family Planning and HD
I was happy to collaborate with the Huntington Society of Canada on this month's issue of "Strength & Knowledge". The fact sheet shares different ways of creating a family when you are at risk for Huntington Disease. Figuring out how to have children can be a...
Appearances
March 2023: Guest Speaker at the HDYO Congress in Glasgow Scotland
I am beyond excited to be speaking at the upcoming HDYO Congress in Glasgow Scotland. I will be on a panel speaking about getting involved in the Huntington's community and some of the advocacy work I have been doing. I can't wait to meet you there! The event takes...
October 2022: HD Education Day with Erin – Presented by HDSA
I will be speaking about going through genetic testing & how my gene positive diagnosis impacted my life, including my decision to have children. Presented by Huntington's Disease Society of America Saturday October 29, 2022 10:30 - 2:00 Buffalo Airport Hotel 4600...
March 2022: Help 4 HD Virtual Education Event
I will be answering 20 questions about Huntington's disease at a virtual education event hosted by Help4HD. You can catch me on Saturday March 12 at 1:15 EST. Tickets to the event are free and can be found HERE.
March 2022: Guest Speaker at HDYO Virtual Congress
I am excited to be speaking on the Testing Positive panel at HDYO's International Young Adults Congress in March. I will be sharing my experiences with going through genetic testing and speaking about how my gene positive diagnosis impacted my decision to have a...
January 2022: Talking about Silver Linings at the Spoken Lives Speaker Series
I was honoured to be a guest speaker for the Spoken Lives speaker series last night. The theme of the evening was the silver linings of the pandemic. I was so happy to share the story behind my book, All Good Things, and how the pandemic provided the perfect...
December 2022: Worldwide Wish Hosted by Jimmy Pollard
I spoke to Jimmy Pollard and the Huntington's disease (HD) community on New Year's Eve about my Huntington's disease story. As a part of the evening participants were invited to make a wish for 2022. Here is my wish... "For anyone who is trying to create their family...
Happenings
BIG NEWS!!! Publishing Company Launch
BIG NEWS!!! Have you experienced the POWER of books? After I was diagnosed as gene positive for Huntington’s disease I fell into a deep depression. I could hardly get out of bed each morning. I was afraid to be anywhere alone because my mind would start racing and I’d...
Book Fairy Christmas Tour
Copies of All Good Things are being hidden by book fairies all across Canada for people to find. If you live in Thunder Bay, Calgary, Toronto, Saskatchewan or Montreal keep an eye out for free copies of my books.
BIG NEWS COMING SOON!
I have been working away on an amazing project that will empower and connect people experiencing hardships in their lives. I can't wait to share it with you. More details will be coming out next week!
Virtual Book Launch – PODCAST TOUR
You can catch me a bunch of podcasts as a part of my virtual book launch podcast tour. Listen now to Help 4 HD Live, We Have a Voice, Between the Lines and Embraced Simplified. Coming out soon, HD Insights, Kevin MD and Hot Mess to Awesomeness
Virtual Book Launch – BLOG TOUR
I am excited to be sharing excerpts of my book on these fabulous websites as a part of my virtual book launch. You can read the stories on Kevin MD, We Have a Face, The Mighty and Find A Cure Foundation. Since November is adoption awareness month I have also shared...
Paperback Now Available – All Good Things: A Memoir
The trade paperback of All Good Things is now available on Amazon worldwide. Here is what people are saying about the book so far: A raw and honest account of Erin’s journey with testing for the genetic condition Huntington’s disease and wanting to have children....
Book the Author
erin@erinpaterson.com
Contact the Author
hello@erinpaterson.com
Special Order Erin’s Books
Erin.Paterson@LemonadeCommunity.com