Publications & Appearances
Podcasts
Articles
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Appearances
Happenings
Podcasts
Confronting Physician Bias on The Podcast by Kevin MD
Having the opportunity to share our experiences as a community is so important. I am grateful to Kevin Pho of The Podcast by Kevin MD for creating a valuable space to do that. I was on the show speaking about my experiences advocating for my Dad while he was in the...
The Gift of Huntington’s Disease on the Hot Mess to Awesomeness Podcast
After testing gene positive for Huntington’s disease I told myself, I don’t want this to ruin my life. I want to find happiness again. I spoke to host Dionne Thomson on her podcast about how I found out a genetic disease ran in my family, the depression that followed...
Living a Meaningful Life on the Own Your Choices Own Your Life Podcast
I was so touched to have this conversation with Marsha on the Own Your Choices Own Your Life podcast. We briefly talked about the hardships I have been through but more of the conversation was focused on taking positive action in our lives despite the bad things that...
Rare Disease and the Impacts on Family Planning on the Path to Me Podcast
I was interview by Sara Glendenning on the Path to Me Podcast about what it's like living as a person who is gene positive for Huntington's disease (HD). We covered a lot of important topics including having kids when they are at risk for a genetic disease, going...
The Emotional Impact of Genetic Testing on The Podcast by Kevin MD
I spoke to host Kevin MD about the what it felt like in the months after testing gene positive diagnosis for Huntington's disease. We talked about the depression I went through and the things I did to cope with the news. Episodes of this podcast are a quick 15 minutes...
An Meaningful Conversation about Huntington’s on the HD Insights Podcast
Kevin Gregory host of the HD Insights Podcast got beyond the surface level and asked some really in-depth questions about living with Huntington's disease in the family. This is a podcast you don’t want to miss! I am so grateful for the opportunity to speak about such...
Articles
Person with Huntington’s Disease on Popular Netflix Show
“Do you feel the representation of Huntington’s disease (HD) is accurate on Virgin River?” A close friend of mine asked me today. As I sat in my living room, drinking my morning coffee and scrolling through Instagram, I thought about her question. Funnily enough I had...
Advocating for a Sick Parent by Confronting Physician Bias
I spent the first three days sitting next to my dad’s hospital bed, watching his chest rise and fall slowly. He was asleep the majority of the time, fighting off something unknown. Anytime he moved, I jumped up from my chair and stood where he could see me just in...
The Day We Met Our Newborn Baby Through Adoption
We had been carrying an empty infant car seat around with us all morning. At the check-in counter, through security, at the magazine shop. It was on the floor next to us as we anxiously sat at our gate waiting for our flight to board. “Do you think people are...
What It’s Like to Be Infertile When You A Have Rare Disease
I slipped my cell phone into my back pocket and headed down to the cramped washroom in the basement for a little privacy. With shaking hands, I called into my voicemail and listened to the now familiar voice of the nurse: “Your pregnancy test came back negative. I am...
How We Wrote Our Adoption Profile Letter
One evening I sat down at my desk in my home office, turned on the orange lamp next to me, and prepared to write by its soft glow. Before placing my fingers on the keyboard, I took a deep breath and sat there imagining the expectant parents somewhere out there, trying...
How I’m Taking Back Control After Receiving a Rare Disease Diagnosis
I was sitting next to my husband in a sterile hospital room. I was so nervous; pools of sweat had already gathered beneath my arms. The genetic counselor, across the table from us, removed a piece of paper from the white envelope in her hand. She knew we were anxious...
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Appearances
December 2023: See you at Wish!
See you at Wish 2024! I will be at this event hosted by Jimmy Pollard. It is an amazing event where HD families worldwide have the opportunity to share their stories and make a wish for the HD community for 2024. If you would like to attend you can reach out to Jimmy...
November 2023: Guest Speaker at the Huntington Society of Canada National Conference
The Huntington Society of Canada is having their first national conference in five years. I am so excited to be there. I will be speaking on a panel with other community members about raising awareness for Huntington's Disease. I will also have a table with copies of...
November 2023: Keynote Speaker – Huntington Study Group’s Annual Meeting
I am so excited for this! I will speaking at the Huntington Study Groups annual meeting in Arizona this November. It is a three day event. I will have a booth with copies of my latest book Huntington's Disease Heroes. You can catch me speaking on Saturday November 4th...
June 2023: HD Reach Book Club Appearance
I am so excited to be attending the HD book club meeting next month hosted by HD Reach. Members of the community are reading the first ten chapters of Huntington's Disease Heroes and will be discussing the stories that night. I will be at attending virtually. The...
June 2023: Guest Speaker at the Huntington’s Disease Alliance Family Voices Webinar
I will be speaking at an virtual event hosted by the Huntington's Disease Alliance on Thursday June 22, 2023 at 2pm EST I will be sharing my experiences living with HD in the family and the release of my new collaborative book called Huntington's Disease Heroes. You...
March 2023: Guest Speaker at the HDYO Congress in Glasgow Scotland
I am beyond excited to be speaking at the upcoming HDYO Congress in Glasgow Scotland. I will be on a panel speaking about getting involved in the Huntington's community and some of the advocacy work I have been doing. I can't wait to meet you there! The event takes...
Happenings
Virtual Book Launch – BLOG TOUR
I am excited to be sharing excerpts of my book on these fabulous websites as a part of my virtual book launch. You can read the stories on Kevin MD, We Have a Face, The Mighty and Find A Cure Foundation. Since November is adoption awareness month I have also shared...
Paperback Now Available – All Good Things: A Memoir
The trade paperback of All Good Things is now available on Amazon worldwide. Here is what people are saying about the book so far: A raw and honest account of Erin’s journey with testing for the genetic condition Huntington’s disease and wanting to have children....
All Good Things – Ebook Now Available
I am incredibly excited to let you know that the ebook version of, All Good Things, is now available on Amazon. I can’t even explain how amazing it feels that my book has finally been released after four years of hard work. Here is a little bit about the book: Erin...
Book Cover Reveal for All Good Things: A Memoir
I am excited to finally share the cover of my new book being released this fall. Here is a little bit about it… All Good Things: A Memoir About Genetic Testing, Infertility and One Woman’s Relentless Search for Happiness. Erin Paterson always expected she’d get...
From Where I Stand – A Monthly Column about Huntington’s Disease
I am so excited to announce that I will be writing a monthly column about my experiences with Huntington's Disease. The column is called "From Where I Stand" and will be published on Huntingtonsdiseasenews.com. My first post will be out by the end of the month.
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erin@erinpaterson.com
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hello@erinpaterson.com
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Erin.Paterson@LemonadeCommunity.com