Help 4 HD International asked me 20 questions about living with Huntington’s disease in the family. Why did you decide to get tested? What is your biggest struggle? If you had the world’s attention for 15 seconds what would you say? You can read the whole article on Help 4 HD
I was recently interview for story which has been featured on the rare disease website - Know Rare. You can read the...
When you spend years of your life hiding something (that Huntington’s was in my family) that feeling of shame sticks...
I have a rare disease, well not quite yet, but I live with Huntington’s every day. I am gene positive for Huntington’s...
0 Comments