Know Rare Interview with Erin Paterson

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I was recently interview for story which has been featured on the rare disease website – Know Rare. You can read the article HERE

Visiting Wave Life Sciences as a Patient Advocate

Mar 14, 2024

When you spend years of your life hiding something (that Huntington’s was in my family) that feeling of shame sticks...

Feb 28, 2024

I have a rare disease, well not quite yet, but I live with Huntington’s every day. I am gene positive for Huntington’s...

Feb 15, 2024

I have been invited to Boston to speak at the Wave Life Sciences offices next month. I will be representing the...