Family Planning, Featured, Huntington Disease, Mental Health
“I was 12 years old when my grandmother passed away and I hated her. I just thought of her as a mean old lady who never smiled or spoke to me. I hated the way that thinking about her and talking about her took up so much of my family’s time and energy. Every time my...
Adoption, Appearance, Family Planning, Huntington Disease, Infertility, Mental Health
I will be speaking at an virtual event hosted by the Huntington’s Disease Alliance on Thursday June 22, 2023 at 2pm EST I will be sharing my experiences living with HD in the family and the release of my new collaborative book called Huntington’s Disease...
Huntington Disease, Positive Living, Uncategorized
I had the pleasure of speaking to Kevin on The Podcast by Kevin MD about the role of being a caregiver as someone who is gene positve for Huntingtington’s disease, caregiver burnout and speaking to kids about medical issues. The episode will be released in a few...
Article, Family Planning, Huntington Disease, Mental Health, Positive Living
These days as my father’s Huntington’s disease progresses and I take on more and more, I have learned how quickly being a caregiver can consume my life. Yes, he is still living two hours away and I don’t take care of his day-to-day needs, but I do everything else for...
Huntington Disease, Mental Health, Podcast, Positive Living
The support for my new collaborative book (Huntington’s Disease Heroes) has been amazing. I was so fortunate to be able to speak about it on an episode of We Have a Voice with host Kevin Jess. Listen Here
