Huntington’s Disease Heroes Book

Written by Erin Paterson

February 21, 2023

I curated this book of stories full of stories from the Huntington’s community. The book features stories from 25 people from 9 countries from a wide range of perspectives. From people who are gene positive, gene negative or untested. People who have had families naturally, or gone through IVF, or are living childfree. People have been caregivers since they were teens to a woman who has been caring for three generations of family members with the disease.

I have also written a story for the book, and so has my daughter. You can purchase the book on Amazon

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